Hello Dr. Cardona and Ms. Truitt,
Good morning.
My wife and I are parents to a child with an IEP at an elementary public school in Wake county in North Carolina. Firstly, we would like to congratulate you both on your appointments this year -- Dr. Cardona, as Secretary of Education, and Ms. Truitt, as Superintendent at North Carolina Department of Public Instruction (NC DPI). Few leaders in our nation and state's public education history have inherited as important a role as you have during a time more challenging than now. We wish you the very best as you serve to protect and strengthen one of America's most important foundations i.e. our public schools. We hope that you will be open to input from all stakeholders, including parents, so that together we can leave this foundation in a better place than we were left with, for our current and future generations.
Today, my wife and I are writing to share the sad news that the Individuals with Disabilities Education Act (IDEA) has lost her soul, shortly after her 45th anniversary. As a result IDEA now continues to live on paper alone. So we have written IDEA a letter to grieve her loss. We would appreciate your taking a few minutes to read our letter further below.
Context:Our sincere hope was that your offices would have helped avoid this tragic outcome. Instead we are at this crossroads because the Office of Special Education Programs (OSEP) has yet to respond to our three questions from Nov 30, 2020 about the NC DPI processing of our State complaint, more than six months later now, and with no future date in sight. OSEP and NC DPI have therefore failed to save IDEA's soul, i.e. the legal validity of the Prior Written Notice (PWN) content -- despite the undeniable evidence in our complaint about our school district i.e. Wake County Public School System's (WCPSS) practice of consistently undermining the same.
Sadly the OSEP Monitoring and State Improvement Planning (MSIP) division had been involved and aware ever since the first IDEA violation. The reality is that NC DPI state complaint procedures, which are supposed to be a "powerful tool" in service of students with disabilities as explained in the Federal Register, have become frail at protecting the core of IDEA. Why is that? Because although NC DPI's complaint investigation follows the letter of the law, it fails her spirit by following just the minimum procedures, contrary to the expectations in the Federal Register, and thereby absolves school districts of their responsibility under the law. And while this sad story is true under the OSEP MSIP division for North Carolina, this could conceivably be the case for any other state, and thereby be affecting all students with disabilities in the United States.
Sad to say that OSEP, NC DPI and WCPSS leadership have together failed IDEA at multiple levels:- most of all, failed my son who is entitled to an appropriately ambitious education- failed his teachers, therapists and staff who work with him on a day-to-day basis- failed so many people who worked so long to bring us to IDEA's 45th anniversary, and- failed President Joe Biden, whose website https://joebiden.com/disabilities/ says:
"Throughout his career, Biden has fought for the rights and opportunities of people with disabilities—working to pass anti-discrimination protections in the Americans with Disabilities Act, the Rehabilitation Act of 1973, the Fair Housing Amendments Act of 1988, the original Individuals with Disabilities Education Act in 1975, and the Affordable Care Act in 2010. As President, Biden will make sure these protections are fully enforced and that people with disabilities have a voice in policy development and implementation."
Our letter to IDEA to grieve her loss:
"Dear IDEA,
My wife and I are writing to share our sincere condolences for losing your soul. Sadly, your loss began well before COVID-19. But let me share this story from the beginning.
Since early 2019, we were inspired when we read, for the first time, your Section 1400(c)(1) wherein the U.S. Congress had found that:"Disability is a natural part of the human experience and in no way diminishes the right of individuals to participate in or contribute to society. Improving educational results for children with disabilities is an essential element of our national policy. of ensuring equality of opportunity, full participation, independent living, and economic self-sufficiency for individuals with disabilities," and that,
"Almost 30 years of research and experience has demonstrated that the education of children with disabilities can be made more effective by having high expectations for such children.
It is natural then that our vision statement in our son's IEP set high expectations of his public education. Please feel free to read our attached vision at leisure. For that matter, we were inspired by the WCPSS brand campaign i.e. "What Starts Here Changes Everything," designed to unify and engage the system’s diverse range of stakeholders to provide that education for all students. We were unaware, however, that we would have to sacrifice our family time and invest inordinate hours including many late nights and weekends -- at the expense of my health -- to uphold those high expectations by advocating for our son's rights at every IEP meeting during the 2019-2020 school year, and as early as first grade. After all, we expected WCPSS would provide the appropriately ambitious education that our son is entitled to by you and NC policies.
Eventually, on September 21, 2020, we respectfully filed a state complaint with NC DPI about multiple violations by WCPSS since October 2019. We explained that the root cause stems from WCPSS Special Education Services (SES) consistently undermining the legal validity of the PWN content, which should have been fully compliant with your and NC policies. We further requested NC DPI to investigate if this root cause were a systemic practice in WCPSS, given the seriousness of the issue. Our request was supported by the OSEP memo on Dispute Resolution procedures, along with the commentary to the regulations published in the Federal Register. And yes, OSEP has confirmed to us, contrary to NC DPI's belief, that the scope of possible state complaints includes those that allege systemic noncompliance by a public agency of having a practice applicable to a group of children that is inconsistent with Part B or the Part B regulations, and wherein the complaint is supported by naming one child. We did clarify however, that we were filing our complaint with the spirit and intent of improving outcomes for our son, and for all students with disabilities in WCPSS. And that we value the efforts, sacrifice and commitment by many educators, but have come to believe that there is a significant need and opportunity for improvement. You see, at the end of the day we consider our son's school a valued partner in developing a foundation for his future, being a magnet school focused on nurturing gifts and talents. It is natural then that we would hope for that partnership to improve in all aspects of our son's education and development.
But sadly the NC DPI Director chose to follow just the minimum procedures in the state investigation, despite the undeniable evidence in our complaint and thereby rendered the state complaint procedures frail at protecting the core of IDEA. "But wait, aren't the state complaint procedures meant to be a 'powerful tool' in service of students with disabilities, as explained in the Federal Register?" you ask? You are right. I know that must have hurt. A lot. So on November 30, 2020, we requested the Associate Division Director at OSEP, who is the MSIP division team lead for NC to help with a written response to three key questions related to your expectations of state complaint procedures. We waited patiently for the written response from OSEP, while including a gentle reminder. As a last resort, on January 31, 2021 we requested our Congresswoman Deborah Ross, who serves the 2nd district of NC, for help with OSEP. Sadly, OSEP has yet to respond to our three questions from November 30, 2020, more than six months later now and with no future date in sight. You should read our November 30, 2020 email below though to understand how OSEP had been involved and aware since the first IDEA violation. My wife and I have now accepted the reality of this sad situation. We are bereft of all hope as we mourn your loss; 45 years is a relatively young age, after all. I am truly sorry.
But how did we get to this point, you ask? Well let's see: firstly, we acknowledge that partnerships, based on mutual trust, result in positive outcomes for everyone. Since day one, we embraced our parental responsibilities while building partnerships with our son's school in any way possible -- by supporting school events, fundraisers, staff appreciation week, classroom activities, and spending many months on founding a "Special education inclusion committee" for the PTA to enhance the inclusion experience for all children -- an effort that our school principal appreciated. But at the same time, we stayed vigilant to protect your soul, i.e. the legal validity of the PWN content, after every IEP meeting by requesting adequate time to review the content before the PWN is implemented. Many parents are not aware about NC DPI training that explains that the PWN allows for such "processing time" to review the PWN and seek resolution if they disagreed with the school's decision.
But WCPSS SES would often not clarify our questions about the PWN adequately, even though providing legally valid clarification could have helped avoid your and NC policy violations; this despite NC DPI training that the PWN is one of the most important parental rights in special education. And what practical options are parents left with when some of the PWN content i.e. a legal document, is written merely to inform, rather than be in strict compliance with state and federal laws? Please let that sink in for a moment. I hear you. This is unconscionable. And sadly, as if that weren't tragic enough, WCPSS SES has most recently started to undermine the PWN even further. e.g. Just last week, WCPSS SES pushed to enforce the implementation date to be just one day after the PWN date, with no good reason, and were thereby willfully violating state and federal laws by impeding our meaningful parental participation. And our school principal refused our request for additional time with the justification that "decisions that are made in the meeting today can be reasonably implemented the day after parents are provided a copy of the Prior Written Notice", even though the decision had a compliance deadline more than two months later in August.
Can I share an example of undermining the PWN content, you ask? Well let's see: back in October 2019, WCPSS SES refused our request for an Independent Evaluation (IEE) following an evaluation report. The PWN claimed that we need to complete the re-evaluation process, including eligibility etermination, and only after then we may request the IEE if we were still not satisfied. The only problem was that WCPSS SES would not clarify our questions about the policy to support this decision. After all, the stated justification doesn't exist in the IEE section of the Parent Rights handbook. Yes, the same handbook that WCPSS SES shares with us diligently. But let us pause to think about an analogy for a moment: writing an IEP is like building a house. Our understanding is that evaluations help us lay a foundation. Sometimes though, the evaluator may uncover a valid reason to question some part of the foundation. That is wonderful, actually, because it means we can take a second look, and build a stronger foundation possibly, to help the IEP team build an appropriate house. But should we first plan for and start building the framing, the walls, the roof, the backyard and the fence, and then re-assess the foundation perhaps? Or should we consider re-assessing the foundation before going too far along? Sounds logical, maybe? But instead, the WCPSS Assistant Superintendent of SES insisted, with emphasis, on moving on without reconsideration for the foundation at that point. It didn't matter that the PWN content i.e. a legal document, was out of compliance. It is worth remembering the WCPSS brand campaign though, namely that "What Starts Here Changes Everything". Sadly, that was the first time your soul was hurt.
Now in all fairness, we understand that every IEP situation is unique. And it is human for WCPSS SES to make "errors" being a large school district, and with limited resources perhaps. We respect that. And that's why it's important to partner with parents, while respecting their legitimate questions about the PWN content, and to be open to possible corrections with a sense of humility because we are all human. But along the way, my wife and I continued to find it difficult to step back from the ongoing violations, as it is only fair procedures, effectively administered and in full compliance with state and federal laws that tend to produce fair results, which is an appropriately ambitious education as interpreted by the U.S. Supreme Court in the landmark Endrew F. v. Douglas RE-1 (2017) decision.
So where is the accountability, you ask? Good question. You see, we've created a hierarchy with OSEP at the top, then NC DPI, then WCPSS SES, then principals, then teachers/therapists/staff and finally students with disabilities (and parents). It's like a top-down organization chart in any large enterprise. And we devolved responsibility to the school district level, but without commensurate oversight at the state level to ensure school district accountability that eliminates unconscionable PWN practices. The tragic outcome is that although our state's complaint investigation follows the letter of the law, it fails her spirit by following just the minimum procedures, contrary to the expectations in the Federal Register, and thereby absolves school districts of their responsibility under the law. And while this sad story is true in North Carolina, this could conceivably be the case in any other state, and thereby be affecting all students with disabilities in the U.S. entitled to an appropriately ambitious public education as interpreted by the U.S. Supreme Court in the landmark Endrew F. v. Douglas RE-1 (2017) decision. Such an outcome has far reaching implications for our current and future generations. Sadly, history will remember us as the generation that enabled such a tragic future.
However, let us try a different perspective for a change: take that top-down organization chart and flip it upside down. Done? Good. Now with all due respect -- see those people at the top, the ones who dedicate their lives in service of our students for those educational outcomes that are an essential element of our national policy? Our OSEP, NC DPI and WCPSS SES leadership who are entrusted to serve our country's public schools works for those people, not the other way around. And it is our leadership's responsibility to ensure those people at the top can truly thrive, because if a leader isn't a servant who inspires by example, then he/she is no leader at all. And while our current leadership may intend for them to thrive, the sad reality is that we are falling far short of that aspiration today.
Now here we are mourning your loss today. We may need a memorial so all families can pay their respects to your 45-year legacy. And we have a responsibility to understand how this is a teachable moment for everyone to protect and strengthen our public schools, so that together we can leave one of America's most important foundations in a better place than we were left with, for our current and future generations. So we pray for grace to return to the light of day, by restoring the kind of leadership that our current and future generation of students with disabilities not only deserve, but that we desperately need for our national policy today, so that the United States may shine as a beacon of hope for the rest of the world tomorrow. And we look forward to that light of day, "for there is always light, if only we are brave enough to see it, If only we are brave enough to be it," as we learned in the poem "The Hill We Climb" at the Presidential inauguration in January 2021.
I would like to leave you with a renewed sense of hope from then President-elect Joe Biden's speech on November 7, 2020. Until we meet again: #RIP-IDEA-1975-2021 #TheNextRightThing
From https://joebiden.com/presidency-for-all-americans/#
"I’ve always believed we can define America in one word: Possibilities. That in America everyone should be given the opportunity to go as far as their dreams and God-given ability will take them. You see, I believe in the possibility of this country. We’re always looking ahead. Ahead to an America that never leaves anyone behind. Ahead to an America that never gives up, never gives in. This is a great nation. And we are a good people. This is the United States of America. And there has never been anything we haven’t been able to do when we’ve done it together."
Best,
Priti Daswani and Anil Daswani